I've heard people say that going on Facebook
depresses them. They see other people's happy lives and exotic travels and
wonder if their own measure up. I don't usually have that experience, though. I
like to live vicariously through my Facebook friends, seeing faraway places and
"doing" exotic things I don’t have the time or brio to get around to
on my own.
But it was different yesterday, when I found
myself pouring over pictures of Sally's wedding. There was a video clip of her
father walking her down the "aisle" -- a dirt path in a vineyard in
Sonoma County -- that I played four times before unhappiness overwhelmed.
Was it jealousy? Not exactly. You see, Sally used
to be in love with my son.
I have a picture of the two of them going to
prom. She wears a long black dress with big white polka dots and long white
gloves. He's wearing a suit jacket and slacks. They pose in front of a backdrop
of Paris. He has a red lipstick kiss on his cheek. She holds her fingers up in
front of her mouth, miming "Oh!" His hands are around her slender
waist as he leans back and flirts with the camera, vamping right along with
her. Compliantly playing his role.
It's exactly the kind of photo Sally would
compose: charming, funny, and planned down to the last detail. Some attendees
at her wedding took pictures of their place settings. Each one was unique. She
wrote the name cards by hand and adorned them with photos she’d chosen to be
personally relevant to each guest. Sally is the Scrapbooking Queen. She is the
Anti-chaos.
Her love for Scott was a puppy love, sure, but I
remember it fondly. Because back then, we had all kinds of hopes for our son.
He'd been hard to raise: stubborn and defiant, but also smart and handsome and
often charming, awake to possibilities in the world around him, intensely
alive. We hoped that growing older would smooth out his rough edges. We worried
that it would not.
Because mental illness runs in my family, and
sometimes Scott’s behavior felt too familiar for comfort. My father was
bipolar. Two cousins on my mom's side--the same. An uncle died of alcohol. And
there was a long stretch of time when I had panic attacks.
I remember lying in bed one afternoon when
Sally's mom came over to loan me some self-help tapes. We talked of Sally and
Scott's budding romance, and I admitted I was worried that something was wrong
with my son. Less than year later, at age 18, Scott had his first psychotic
break. And over the next 12 years, he's taken us on a hell ride.
While Sally was vowing to love and cherish her
sweet man in a creamy bridal dress on a bucolic farm in Sonoma, my son was
struggling with security guards at a psychiatric hospital, breaking a window
and getting a black eye in the course of refusing antipsychotic medication.
Today, he isn't speaking to me. He asked me to
show up at a hearing at the hospital to tell the administration that he can
take care of himself. But I didn't, because he can't.
Besides having schizoaffective disorder, Scott
uses alcohol, marijuana, and crystal meth. I want him to stop, but I also
sympathize. Perhaps if I were homeless, without a place to pee, or sleep
safely, or even sit down, and unable to separate delusion from reality--enemies
from friends--I might use drugs, too. I might want some relief.
Trying to get help for him has been Kafkaesque.
There are laws that protect his "right" to be mentally ill, allowing
him to refuse medication and treatment and walk out of a hospital at any time,
despite the fact that a common symptom of mental illness is not knowing that
you're mentally ill.
We’ve called the police to our home more than
once, asking for help getting Scott to a hospital, only to be told that
carrying his pee around in a bottle in his pocket, hiding in the cramped crawl
space over the garage, or ranting non-stop for four hours straight is "not
a danger to himself or others," so doesn't meet the legal requirement for
them to take him into custody against his will.
Even when we do manage to get him hospitalized,
they don’t keep him long enough to make a difference. Three days is typical.
Rarely, that’s extended to 10. All across America, we've lost 96 percent of the
psychiatric beds we had back in the '50's, so hospital personnel keep their
psych patients churning, to make room for the next person in line.
You might think a person like Scott is his
family’s problem, not the government’s. And we’ve tried to help him. Believe
me, we’ve tried. When living together became untenable, we lined up a room in a
hotel in North Beach where he antagonized the manager, threatening lawsuits
because he wasn’t allowed to bring in random homeless people to sleep on the
floor in his room. When we bought him a small trailer in Belmont, he ripped out
the built-in furniture and used it to create “artwork” in his driveway. His toilet
got clogged, so he shoveled the shit into his shower. Then big, burly meth
users moved in. He was lying in a puddle of glass on the floor of that trailer,
beaten bloody and semi-conscious, when he called to tell me, “Mom, I’m afraid
I’m trying to get myself killed.”
Scott's been homeless. Dirty. Pathetic.
Aggressive. Beaten up. Broken. Afraid. We used to let him come into our house
to use the shower or toilet, spend a night on the couch, or share a meal, even
though sometimes he’d start yelling and refuse to stop or leave. But two years
ago, his dad had a heart attack, followed by triple bypass surgery, while Scott
was yelling at me in another room. So I don't let him into the house anymore. I
meet him at a park, or a restaurant. I visit him in the hospital, or jail.
Even with our unflinching support, Scott hasn’t
been able to put any kind of life together in the 12 years since that first
psychotic break. He doesn’t cooperate with doctors, or take his medication as
prescribed. He opposes efforts to help him, and doesn’t see what his
stubbornness costs. One time he let two muggers beat him senseless rather than
hand over $20 clutched tightly in his fist. That’s emblematic of his illness.
He’d rather die than submit to authority. But I’m not ready. I’m not ready to
let my son die.
The period when we saw most improvement in Scott
was the year when he was conserved, meaning a public guardian made Scott’s
decisions for him, requiring him to take medication and stay in a locked
psychiatric hospital where he got therapy and got off street drugs. He was
friendly when I came to visit. He made a friend, participated in groups. And
his father, sister, brother and I hoped that one day he’d be able to live among
us, work in our family cafe, come to Christmas again.
Then a judge who’d seen him for five minutes
decided he was no longer severely disabled and released him back onto the
street.
The judge was wrong. Scott needs what every
floridly psychotic person you see on the street needs: to be taken into custody
and given medication--whether they want it or not. To be given a safe place to
sleep, a hot shower, food, therapy. To be coaxed back to reality with kindness
and medical intervention.
In my job giving walking tours of San Francisco,
I talk to people from all over the world. A recent tourist from Israel said he
wouldn't be coming back anytime soon because when he got up early one morning
and walked down Market Street, he saw mentally ill homeless people everywhere
he looked, stepped around junkies on the sidewalk shooting up heroin, smelled
feces and urine on the street.
“Why aren’t you taking care of these people?” he
asked me.
I said we were trying.
He said not hard enough.
And that’s the question I’ve been asking myself
ever since: why aren’t we taking care of these people?
Our current mental health treatment system is
brutal, misguided, and inhumane. Back in the day, people with a major mental
illness could live in an asylum while getting treatment. Then asylums were
closed for “humanitarian” reasons. But it’s not humane to put a person with a
major mental illness out on the street and say, “You’re on your own.”
But that’s what we’re doing, day after day. The
result is upsetting, dangerous, and expensive. And everybody is paying the price: the people
who are mentally ill and abandoned because they are too hard to deal with;
their families who are stressed beyond endurance trying to figure out what to
do next; and people everywhere who have to walk by, turn their heads, harden
their hearts and pretend they don't see the wounded people on the street and
the filth they leave, including garbage, used needles and human waste.
Those old asylums need to be reopened. New group
homes need to be built. Scott wouldn’t agree. He’d rather be set loose to use
meth, get beaten up, freeze, starve, hallucinate and cause trouble everywhere
he goes. He's called more than once to say he fucking hates me. He's called me
a bitch.
But that’s Scott’s illness talking. That’s not my
son. And I won't give up on him. I will never give up. I still remember who he
was before he became psychotic. I remember how handsome he looked in that suit
jacket on prom night 12 years ago, and I believe he can do better. Much better.
That's why I cried when I saw the pictures of
Sally's wedding. That’s why I’m still crying now. It’s not that I wish he had
married Sally. I grieve because the kind of sweet, stable life that Sally
represents is no longer an option for my son.
But it could be. I believe it still could be. If
only our nation would wake up and take care of these people.
Why aren’t we taking care of them?